Theme 4: Public and patient involvement and engagement

Patient and Public Involvement (PPIE) in Research: PPIE is a transformative approach in research that emphasizes the active involvement of patients and the public in the research process. Rather than being mere subjects or recipients of research, they play an integral role in shaping, conducting, and translating research. 

Enhancing Existing Networks: Within the AIM programme, there's a concerted effort to bolster existing PPIE networks. This not only ensures that a diverse range of voices are heard but also fosters a collaborative environment where patients, the public, and researchers can work synergistically. 

Empowering People with Lived Experience of MLTC: Multiple Long-Term Conditions (MLTC) present unique challenges and experiences for those living with them. The AIM RSF recognises the invaluable insights that these individuals bring to the table. By empowering them to co-create research with the AIM consortia, the programme ensures that research is not only relevant but also resonates with the real-world challenges and needs of those with MLTC.

Promotion of Best Practices: Beyond just involvement, the AIM RSF is a staunch advocate for the adoption of best practices in research. This encompasses ensuring that research methodologies are robust, ethical, and inclusive. It also means that research outputs are accessible to a broader audience, irrespective of their background or abilities. 

Accessible and Inclusive Research: Inclusivity is at the heart of the AIM RSF's approach to research. Recognising the diverse needs of the community, efforts are made to ensure that research is accessible to all. This includes making research findings available in various formats, using plain language, and ensuring physical and digital accessibility. By doing so, the AIM RSF ensures that research is not just for the academic community but for everyone who stands to benefit from it. 

In essence, the PPIE initiative within the AIM RSF is a testament to the programme's commitment to democratising research, ensuring that it is by the people, for the people, and with the people. 

Join us our monthly PPIE Community Session hosted with the PPIE Community of Practice and the AI for Multiple Long Term Conditions Research Support Facility by contacting [email protected]